Our Mission


Our Goals

The main goals of the Marfan Association Victoria Incorporated are:

  • To provide accurate and timely information about Marfan syndrome to those affected by this genetic disorder, their families, friends, health professionals, and other interested people
  • To provide support and opportunities to share experiences and improve medical care for those affected
  • To promote Marfan awareness within the community
  • To support and foster research on Marfan syndrome