About Us


Marfan Association Victoria

A Marfan Support Group was initially formed in 1989 by a group of volunteers either affected by or interested in Marfan syndrome. Following the group’s success and interest from the public and medical fraternity, The Marfan Association Victoria Incorporated was established in 1997.

A support group for adults, children and families affected by Marfan syndrome

Today, the Marfan Association Victoria Committee is made up of volunteers who have all been directly affected by Marfan syndrome. These people have experienced hardships and heartbreak, often have full or part time jobs and run busy households so we are very grateful for their commitment and dedication to Marfan syndrome awareness.