A Marfan Support Group was initially formed in 1989 by a group of volunteers either affected by or interested in the Marfan syndrome. The Marfan Association Victoria Incorporated was established in 1997.
The main goals of the association are:
- To provide accurate and timely information about Marfan syndrome to those affected by this genetic disorder, their families, friends, health professionals, and other interested people
- To provide support and opportunities to share experiences and improve medical care for those affected
- To promote Marfan awareness within the community
- To support and foster research on Marfan syndrome
Incorporated Registration No.
ABN 68 202 853 981