Marfan Syndrome Conference

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Marfan Association Victoria, Inc.

A Marfan Support Group was initially formed in 1989 by a group of volunteers either affected by or interested in the Marfan syndrome.  The Marfan Association Victoria Incorporated was established in 1997.

The main goals of the association are:

  • To provide accurate and timely information about Marfan syndrome to those affected by this genetic disorder, their families, friends, health professionals, and other interested people
  • To provide support and opportunities to share experiences and improve medical care for those affected
  • To promote Marfan awareness within the community
  • To support and foster research on Marfan syndrome

Incorporated Registration No.
ABN 68 202 853 981

Marfan Syndrome Awareness Video

Marfan Association Victoria Inc.

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