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8th Annual Walk for Marfan

It’s on again!

When: Sunday 19th April 2015

Where: Swan Picnic Area, Albert Park Lake (Melways Ref: Map 2K, G5)

Registrations from 10:30am
Walk starts at 11:30am
Sausage Sizzle at 12:30pm


View Walk For Marfan in a larger map

Registration:  Please register on the day. Registrations open at 10:30am.

Donations may be made via GiveNow http://www.givenow.com.au/marfanvicwalk. This is a secure way to donate and will automatically generate a receipt for every donation.

We encourage everyone to submit their donations via Give Now or by direct bank deposit (National Australia Bank, Acct #: 688 964 560 BSB#: 083-472 . Please include your Name in the description) PRIOR to the day if possible. BUT please bring your completed Donation Record Form (attached below) to the Registration desk when you arrive. Hint: Make sure all details are legible.

Invite your friends and family to participate!

There will be a T-shirt sales, silent auction, raffle, sales table, face painting, children’s activities and a Coffee Van on site. Come and have a fun day with us.

Consider sending your family and friends an email telling them about the walk and asking them to join the walk or sponsor you! You’ll be surprised by how many people would love to help a good cause that is close to your heart!

This year proceeds will be used by the Marfan Association Victoria Inc. to fund research into Marfan Syndrome.

 Donations Record Form 2015-page-001


 

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Marfan Association Victoria, Inc.

A Marfan Support Group was initially formed in 1989 by a group of volunteers either affected by or interested in the Marfan syndrome.  The Marfan Association Victoria Incorporated was established in 1997.

The main goals of the association are:

  • To provide accurate and timely information about Marfan syndrome to those affected by this genetic disorder, their families, friends, health professionals, and other interested people
  • To provide support and opportunities to share experiences and improve medical care for those affected
  • To promote Marfan awareness within the community
  • To support and foster research on Marfan syndrome

Incorporated Registration No.
A00035966F
ABN 68 202 853 981

Marfan Syndrome Awareness Video

Marfan Association Victoria Inc.



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